I have been reading everything you guys have wrote. Mainly ones asking for help because their child has RSD. I just want to tell you to hold on tight to them while you can. Its hard going at this alone like I did and still am. Show them you love them. Ask them if they need help. If they say no, help them anyway. The hardest part of RSD is not having anyone to turn to when you need them most. Children especially need to feel like they are part of something even though they cant do much sometimes. Ask them to help you out with whatever they think they can do at certain times when they feel better. They will get a sense of pride because even though they are in pain they can still be apart of something. Dont let your kids go at this alone... It would cost you in the end.