 |
Member
|
|
Join Date: Apr 2009
Location: Tenn
Posts: 554
|
|
|
Member
Join Date: Apr 2009
Location: Tenn
Posts: 554
|
Pollyest, ARE you seeing an MG specialist?? If not, then he may not recognize WHAT you've got -- even if it hits him right SMACK in the face.
About the Tensilon test. Ephedrine and epinephrine are KNOWN to be treatments for MG (old time). Epinephrine is adrenaline -- something ALSO produced by our own bodies. It "is" possible that you were "hyped" up on your OWN adrenalin when you took the Tensilon test -- and this skewed the results -- making the placebo look like a drug. Sometimes, when we get upset, we get worse -- antibodies increase. But, sometimes, stress actually makes us better -- for a short time -- because of an adrenaline surge.
I have had the spasms -- but ONLY when I have over-used the muscles. I equate it to having had the flu -- and being sick in bed for a couple of weeks. Then you get up one day and try to go about a regular schedule. Your body is so weak that it trembles and "spasms" -- you wonder if it will support your weight. THAT is what MG feels like.
I can't say for sure if you have MG -- but, it certainly sounds possible. If you would tell us what area of the country (or WHAT country) you are in, we might be able to point you to some specialists.
__________________
~jana
|