Hi Footprints,
I have read your posts with interest -sorry about your sister and sounds like you have had good medical care, at least. I would not be surprised if the nurosurgeon who is doing sister's cervical care wouldn't say much about her MRI findings. These folks are real specialists - my surgeon had not a word to say upon finding my abnormal refelexes except that I needed to see a neurologist and quick. I find it odd that he/she is venturing to dismiss the findings. How wonderful that the surgery has been so helpful already. That's great.
I appreciate your taking the time to share with me. This is a nerve wracking process and no mistake. I am taking some time to think things over and I will be seeing my neuro next week. I will ask to have Lyme testing and also for the Evoked Potentials since I am still symtpomatic. I'm still feeling better and that is also wonderful - I needed a break. Then, I think I will wait until Feb 6th when I see my neurosurgeon again. I have enormous faith in that doctor. I will lay it all out and ask him what he thinks and whether he would want a second opinion. I also will ask him for a referral since he is Boston based and will have a much wider base to work from than my GP. Boy, there aren't a ton of MS Specialist out there, eh? I figure I have time to wait so I may ask for one and plan to sit out the several month wait.

Hello Carol - nice to meet you. You are sure of MS - not Lyme? I think Lyme is a long shot for me but.... my neighbor keeps reminding me of a friend that was misdiagnosed with MS and is in a real mess now. I do, indeed, look things up just on vocab words. Supratentorial means above the tentorial process of the brain - that's most of the brain, too. My neuro left things that I would see her on Jan 26th as a follow up. The next step was Evoked Potential Testing. But I am not sure what triggers that next step - just the fact that I am still having symtpoms or only if I have a full relapse or new symtpoms. I'll have to see. I liked this doc a lot. I have been told she is very good. I'd love to think that she is and that I am on the recovery side of some unknown illness. But I don't feel much like I am and it has been a long road. I'll have to see. I am heartily sick of docs and doc apts. It would take next to nothing to convince me to forget all about this unhappy episode. Nothing except a strange strobe-like electrical sensation everytime I turn my head and waves of nausea!
BTW- the neuro did a some neuurological testing on my first visit: watch my finger, walk a straight line, touch finger to nose, look up and so on. She did not check the Hoffma's Sign though and that really irks me! I wish you the best of luck and good for you for going looking for a new and more attentive doc. I hate to think i will might have to do the same but... Take good care- suzyq