Sorry you find yourself here. I'm wondering what's being done about your diagnosed spinal problems. I don't know much about it, but it seems if the spine is involved, it could cause some severe problems. Did your neuro discover these? Has he recommended any treatment, or prognosis for the spinal issues? Are they treatable? If so, you might look into that and see if you have any improvement?
All the best and I hope you get relief soon.