Thread: Suspected MG
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Old 12-16-2009, 01:10 PM
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Quote:
Originally Posted by pollyest View Post
After seeing my neurologist today he informed me that my SFEMG came back normal and as such I don't have MG. That and the fact that my scans and nerve conduction studies were also normal. My question to you all is what about the fact that i responded to the ice test and the tensilon (and the placebo as well though)? Is there still a chance I could have mg? the blood test to detect antibodies hasn't come back yet but my dr doubts it'll be positive because he's adamant that the symptoms i am experiencing are due to some emotional component (what exactly he nor I are aware of). I believe he came to this conclusion the very first time I met with him. He said he couldn't find any evidence of a muscle or nerve disease - I was very relieved to hear this - and that my symptoms should just disappear over time without the need to take any medication. His only advise was to try and get on with my life and suggested I see a clinical psychologist if my symptoms persisted. Thankfully I predicted that I would reach a dead end with him and made an appointment with a different, hopefully more helpful neurologist for next week. I am so frustrated because I KNOW there is something wrong. Maybe it's not MG but I also know that emotions can not be solely responsible for the way I'm feeling. It's a lame excuse for not really knowing what's going on!!!
Pollyest, can you get the blood results sent directly to YOU and/or to the NEXT neuro? I think that somebody (Annie??) mentioned that she DID have positive results, but it was somehow "lost"for YEARS -- maybe an "arrogant" physician?? I used to trust ALL doctors -- MG has made me very skeptical. I now have TWO neuros that I do trust -- a regular and a specialist -- but, I've THROWN AWAY about half a dozen neurologists!!

WHY did he suggest a clinical psychologist?? Why not a psychiatrist? Doesn't THAT sound a little odd? If your symptoms are psychosomatic, you might need meds -- and ONLY a psychiatrist could prescribe those.

The "thing" about MG -- a TRAUMATIC event OFTEN makes it "rear its ugly head". You can have MG for years and not know it -- someone dies -- and, suddenly, all of these symptoms FLARE. TOTALLY normal. Search Aristotle Onassis.
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