Steroids are steroids are steroids!!!!! That's not directed at you but your doctors.

Well, I am on Flovent which is an inhaled steroid and it goes systemic in the body. As does what you are on. Anything that suppresses the immune system can make someone with MG have a normal EMG.

And some steroids may be faster acting but the "effect" of the drug on the immune system is something that lasts much longer. This neuro should know that - shame on him.

MG and CMS are two different things. There is no genetic blood test for MG, only CMS. MG is an autoimmune process. CMS is caused by a genetic defect.

It gets confusing because there are genes that can cause MG but they don't have "tests" for them. They have HLA typing, which can show the possibility of having a disease. It's complicated!!!

An eye doctor is not the same as a neuro-ophthalmologist. You need the "NO" to help you figure out if you have fatigable weakness. Sometimes they do the Tensilon test.

You want to know why no one will come out and say "MG?" Because if your neuro screwed up, and someone else said that you have it, he can get sued. Sometimes it actually helps to say, I don't want to sue anyone, I just want some help and to feel better.

You need help. Get someone, anyone, who can pull all this together and make an intelligent conclusion based on SCIENTIFIC EVIDENCE of what to do next.

I'm sorry there are so many medical "professionals" out there who can't seem to help patients, especially with this disease. I hope you get some help soon.

Annie