Hi!! Glad to know someone out there is just like me!!
But not a good thing! hehehe... Although, I've never been woken up my an attack. Mine lasts anywhere between 5 to around 20 minutes. longest was prolly around 25 mins. Mine feel like bad tooth ache all my teeth and jaw area but all of my left teeth - upper and lower. damn. sometimes sinus and temple.... weird i feel little spasms here and there too..
About the Topamax... I think the reason why i'm ok with it is coz, i take it at night, my neuro advised me to take it before bedtime..so that i dont feel the side effects... since that was my biggest prob with Tegretol. So far, i think 50 mg of Topamax.. "might" be helping "a little" bit... still testin it.
Do you ever feel like your symptoms are tightness and dull boring aches like "atypical trigeminal neuralgia" but are they actually "constant"? or do they come and go? ----- reason i ask is because, mine come and go. I have "attacks". The Symptoms of ATN are (constant -meaning all day pain of dull ache)...but mine's not like that... so i just wanna know.. if I really am or I am not TN/ATN.... :")
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Originally Posted by toughspiders
Jen
Your symptom are so like mine its unbelieveable...Mine wakes me in the night usually around 230 -3am. The only relief i get is that i know they last between 10 mins and 4 mins.
They completely wipe me out and i feel really weak and tired after them.
The symptoms vary - sometimes it red hot poke along the inner gum area of the top and bottom molar areas. Sometimes its seems to be lower mouth area, sometimes its in the temple..but always in the ear. I had an attack last night and my teeth , jaw and face is aching today.
I too tried the topamox...i only took it for a week or two - it sent me a bit doolally!! I went to work with odd shoes on and didnt realise until i got home and took them off.
Im now on amytryptiline and whilst im getting minimal side effect i should say ive had less strong attack...but..i fugure thats coz noone has been rooting about in my mouth. I know that the dentist triggers and attack, not at the dentist but later in the day.
I went to the GP he looking in there...later another attack. Mine seem to be linked to my jaw i think????
PS - whenever i have dentistry they can never get my lower jaw numb with local anaesthesia, i always have to have a nerve block..is anyone else the same??
This pain sure does make your life miserable doesnt it
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