Otherwise known as Limb-Girdle (DOK7). Ask your primary doctor to test your creatine phosphokinase (CPK) to see if it is elevated. Make sure you walk around before the test. It's a simple blood test.

And some of the CMS take longer to fatigue and are more severe when they do fatigue, so 3 repetitions are not going to fatigue a person with it.

Thanks, Alice.

I am so very sorry that there isn't a doctor taking your situation seriously. Again, gather all the evidence together. Type it up on one page. It's amazing how seriously doctors will take you if something is written up and in an organized fashion.

And take some photos too.

I hope someone will help you soon.

Annie