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Grand Magnate
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Join Date: Aug 2006
Posts: 4,440
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Grand Magnate
Join Date: Aug 2006
Posts: 4,440
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Quote:
Originally Posted by JonAlex
Mrs. D, I was recently diagnosed with PN and I wanted to ask you about B6. I had been taking one multivitamin with 3 mg of B6, 2 calcium citrate supplements with 10 mg/tablet and one B50 supplement (periodically). Total B6 intake from supplements was 73 mg. My pyridoxine level was 47.4 ng/ml (ref range 5.0-30.0). I had significant peripheral neuropathy symptoms at that level. I stopped the B6 and most symptoms subsided within a couple of weeks. My current B6 level is 5.0 ng/ml and I am taking no supplements. I should add I still have an underlying mild neuropathy which my neurologist suspects is CMT. I don't have any neuropathic pain, just some spotty numbness in the feet. Everything I have read says I should be okay taking up to 100 mg of B6. Why am I different? I'd like to take some B6 just to get a little higher in the normal range. Do you recommend the P5P? By the way, I am a 60 year old male, otherwise in good health, very physically active.
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Apparently you have not been diagnosed with CMT but it is suspected. There are many types of CMT as you may know. The CMT expert recommends only taking 25 mg of B-6 per day. If in fact you do have CMT, the dosage could vary but you seem to be back to what you were before after stopping B-6. You are more susceptible to this if you have CMT. Damage can become irreversible. You are different from other people as far as the dosage if in fact you do have CMT. You also get B-6 in your diet if you are eating healthy.
CMT is progressive no matter what you do. If you exercise too much (your body will tell you) you can exacerbate CMT symptoms. It perhaps would be in order to know for certain if in fact you do have CMT or something else going on.
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Kitt
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"It is what it is."
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