Quote:
Originally Posted by SallyC
I hear ya, pud's. I was on Avonex and hated it for how it was making me feel. I think it may have helped too, but at what cost.. 
Maybe you could switch to Copaxone. I did and had no side effects, except that I keep on having exacerbations, so I stopped it too.
Good luck with your choice...Don't forget about LDN. A lot of Peeps on your side of the Pond are on it.  |
That's my exact story except it was rebif I was on for a year and a half. I know it was working but I couldn't take it anymore and the copaxone didn't affect me much at all but I kept on having bouts of ON.
I spoke with my neuro about LDN the last week and he said he was(n't) recommending it because of the lack of study, but said he had another patient that was on it from which I assume he would give it to me if I asked. Still thinking about that. A good diet and exercise has seems to be staving it off lately. <fingers crossed>
Hope you find a happy median pud.
__________________
Keith - dx'd 2/07
rebif 3/07 - 12/07
relapse 2/08
copaxone 3/08 - 11/08
relapse 5/08
relapse 10/08
rebif 2/09
Minocycline 6/09
Not a damn thing 7/09
"Where's my Uranium PU36 Explosive Space Immune System Modulator?"