Originally Posted by painfullylovinglife

I just am wondering, has your son had an MRI done on his back? for over 10 years I have had painful attacks in my back and my "rsd" doc said it was just the RSd. The signs/siymptoms fit what I was feeling in rest of body. Then 6 months ago he said he wanted to do an MRI with contrast on my back. That the pain was getting worse, my activity levels were bottomed out over the pain and he want to double check to make sure nothing else was wrong. Now, I've had several (well enough MRI/ct scans/xrays/denisty/etc done to glow in the dark like an area 51 client) tests done throughout my life, every area I have complained of this pain has been checked, double, triple quadruple checked.... The results of this last mri proved that I had something far more wrong than just RSD in the back. Arachnoiditis. Its a bundling of the nerves around the spinal cord, in the spinal canal. Its dibilitating, its non treatable, or uncurable. ONly a few things can cause this, menigitis as a child, trauma/injury, or methatraxate injections into the spine. I have had none of these. The neuro I see says he has NEVER seen a case where one of the three things has never happened and someone suffer from this. My only options are a pain pump or HIGH levels of narcotics to help the pain. Please have his back thoroughly checked. This acrachnoiditis feels EXACTLY like my rsd and that is how its been treated since I was offically diagnosed. Most days my back pain is in the lower area but there are times the pain radiates all the way into my neck and shoulder blades. It will hit so fast and hard in my upper back that I loose my legs and breathing abilities instantly.
I just want to offer this info, because of my own experience. My RSD dr is awesome, he has literally given me some life back from my treatments and trust him better than all the other docs I see. He would have been doing something different for my back had he even known there was a chance of this disease in me. The one thing I do hope you prepare for, if you choose to look into this route, if you go to a neuro for an odd mri result on your son, the lil monster (dr) may try to say your child had menigitis and you never knew it. This was said to my mom and she about tore that neuro's head off and spit in his throat. She was highly offended by his demeanor and insinuations. Because of her own health she monitored my sis and I very carefully and took us to dr's anytime we seemed half sick. Unforturnately she has watched me grow into the medical case I am now and made sure to never ignore my complaints of pain like hers were ignored. I sure hope your son feels some relief soon.