Hi Craig ... long time no see.
Sorry to hear about the recent dx, and the lack of treatment available.

Seems they just don't have this brain stuff figured out for us yet, eh?
Wishing you well, and thanks for the update.
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.