Welcome, cowgirl!

I was diagnosed with MG in February of this year. I also had a thymoma. Seems like the MG might be harder to keep under control when a thymoma is involved, because I'm finding that my symptoms are still pretty severe unless I have a plasma exchange (which I was having a full round of almost everything month). Maybe it's because thymomatous MG almost always is bulbar to some degree that it's so refractory (everyone I've come across so far who had a thymoma has had prominent bulbar symptoms). By the way, my ocular weakness is minimal, don't know if it's the same for you. I had a thymectomy in July, and was started on prednisone at the end of July because my MG seemed to have gotten a bit worst. When I was at 80 mgs, I was doing okay, MG-wise, but I had to reduce my dosage as I was becoming insulin-resistant, which made the MG monster creep back.

I'm supposed to be starting imuran, but I've been too tired to get the preliminary blood tests, plus I'm a bit apprehensive at being on so many medications (these medicines are brutal, aren't they?). Mestinon only seems to work for me after I've had plasma exchanges, otherwise, it's like I'm swallowing a Flintstone vitamin (minus the deliciousness and cool colours lol).

Have you tried prednisone/Imuran yet? I'm sure you prolly have.

Anyway, I understand your angst. This is a very good site, with lots of informative and caring people.

Btw, I read that it's very unusual to have seronegative MG when a thymoma is involved. Maybe this is why it's so difficult to treat since mestinon might not help depending on what antibodies are at work.

I've heard of Ritixub, but I've never tried it and don't know much about it. I'm going for a plasma exchange today. When I get back, I'll look into it.

Anyway, talk to you soon, and know that you're not alone anymore!
Nicky