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Old 12-21-2009, 04:24 PM
Joanmarie63 Joanmarie63 is offline
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Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
Joanmarie63 Joanmarie63 is offline
Member
 
Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
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Alice,

Very well written and you are correct when you say Pulmonologists don't understand MG or I should say, don't want to understand it. You wrote...

What are the symptoms and signs that suggest respiratory muscle involvement in myasthenia?

Shortness of breath on physical exertion-eg-climbing steps, walking
Shortness of breath when talking.
Heavy breathing following a meal.
Chest pain or chest tightness..
Feeling dizzy after exertion
Feeling "tired"
Multiple awakening during the night, and non-refreshing sleep.
Waking up with a feeling of suffocation. Sometimes as if you have had a nightmare.
Morning headaches.
Unexplained fatigue.

The above is my daily life..LOL Yet my pulmo pushed me off to my neuro and so on and so on so I just "live" with it. I have had a sleep study done and doesn't it figure that on that night, I slept well. It is so hard to tell what is MG and what may be something else {chest pain/heart} {dizzy/blood pressure} {suffocation/panic attack} <-- that is my personal favorite. LOL.

I can't hold my breath and count past 20, never mind inhaling again while counting, {I tried it} Keep up the good work Alice and I look forward to seeing how it goes for you. {I know I am working on speaking to EMS workers about MG}
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