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Senior Member
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Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
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Senior Member
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
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NPF starts a registry
This was buried in a story about Cystic Fibrosis in the New York Times today:
"Using the cystic fibrosis registry as a model, the National Parkinson Foundation has just started its own registry. It plans to enroll thousands of patients, said Joyce Oberdorf, the foundation’s president. “There are nearly one million Americans with Parkinson’s disease,” she said, “and they have multiple symptoms that can combine in multiple different ways.”
Preliminary data in the new registry showed that patterns of treatment were not consistent and that patients had far more additional diseases and cognitive issues than expected, the foundation said at the World Federation of Neurology meeting last week."
(just looked at the thread post - WRONG emoticon - should have been an exclamation point!!!!!!)
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Carey
“Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony
Last edited by indigogo; 12-21-2009 at 08:56 PM.
Reason: my emoticon should have been an exclamation point!
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