Quote:
Originally Posted by indigogo
This was buried in a story about Cystic Fibrosis in the New York Times today:
"Using the cystic fibrosis registry as a model, the National Parkinson Foundation has just started its own registry. It plans to enroll thousands of patients, said Joyce Oberdorf, the foundation’s president. “There are nearly one million Americans with Parkinson’s disease,” she said, “and they have multiple symptoms that can combine in multiple different ways.”
Preliminary data in the new registry showed that patterns of treatment were not consistent and that patients had far more additional diseases and cognitive issues than expected, the foundation said at the World Federation of Neurology meeting last week."
(just looked at the thread post - WRONG emoticon - should have been an exclamation point!!!!!!) |
'how does this compare with the registry at the Muhammad Ali Center (an npf center of excellence)?