Jean asked a good question: "'how does this compare with the registry at the Muhammad Ali Center (an npf center of excellence)? "

Are we going to end up with as many different registeries as PD organizations?

I think it would be more useful for all the orgs to work together with PAN to pass The National MS and Parkinson's Disease Registries Act. see:
http://capwiz.com/pan/issues/bills/?bill=13110561