Hi Charley and welcome to NT! This IS a great place!

I wonder if you have given any thought to the Baclofen pump? I know it's an invasive device but you do what you have to do to get by.

I too have a lot of spasticity, but it doesn't sound anywhere near yours. I am on baclofen, tizanidine and MMJ for spasticity, along with stretching, monitoring activity on bad days and treating before it gets to the pain stage. My spasticity is in my legs and hands, and every moment I am not working at something else, I am stretching some body part to ease the spasms.

I hope you can find an answer. It's no fun to be in pain all the time and with all the medical stuff available these days, there's got to be something that can help.

"Better living through chemistry" is my motto since MS.