Quote:
Originally Posted by Riverwild
Hi Charley and welcome to NT! This IS a great place!
I wonder if you have given any thought to the Baclofen pump? I know it's an invasive device but you do what you have to do to get by.
I too have a lot of spasticity, but it doesn't sound anywhere near yours. I am on baclofen, tizanidine and MMJ for spasticity, along with stretching, monitoring activity on bad days and treating before it gets to the pain stage. My spasticity is in my legs and hands, and every moment I am not working at something else, I am stretching some body part to ease the spasms.
I hope you can find an answer. It's no fun to be in pain all the time and with all the medical stuff available these days, there's got to be something that can help.
"Better living through chemistry" is my motto since MS.  |
Hi Riverwild,
Wow, baclofen and tizanidine at the same time? I don't think my neuro would let me try that, but I'll ask. Although, I don't know if I could stay awake if I did. What is MMJ? Mixed martial Jarts
? I hadn't considered the baclofen pump just yet, as I'm hoping that this won't last too long; if it does become a permanent thing and I can't resolve it in a better way, then of course I will consider the pump. I think I need to find a physical therapist that knows more about MS and appropriate stretches for MS patients than my current PT. I find deep breathing and bio-feedback help some, but the bio-feedback (breathing control and intentional mind-controlled relaxation of muscle groups) sometimes hurts the spastic muscle more than it helps. Lately the problem with stretching is that, although I don't stretch to the point of pain, a stretch of one muscle that was spasming will often set off a spasm in another.
Anyways, sorry to dump all these problems out here... in truth my life is really good ... I don't want it to sound otherwise.
Thanks for the advice and support,
Charley