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Senior Member
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Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
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Senior Member
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
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would like more info
pnschmidt -
Thank you for your reply and explanation. It sounds like a worthy goal and effort. I am wondering how or where we can find information about the registry - is it on the NPF site? Seems like this deserves more recognition and attention, but not many in the PD patient or organization community seem to be aware of it. Were patients included in the design process of the study/registry?
Thanks!
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Carey
“Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony
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