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Old 12-22-2009, 08:05 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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The problem with a doctor saying "but I've done a lot of blood tests" is that if you don't do the right ones, or think the right way, you can miss something.

I think fibromyalgia is one of those things doctors often decide you have because they can't think of anything else. It's a waste dump diagnosis; no offense to those of you who have fibro.

Another thought I had is that immunosuppression will also make a D-Dimer look more normal.

http://www.labtestsonline.org/unders...imer/test.html
http://www.fpnotebook.com/Hemeonc/Lab/Dmr.htm

If your instincts are telling you this is not fibro, that the symptoms started after a certain medication was begun or that all your symptoms do not fit the diagnosis of fibro, then you need a 2nd opinion. You are not offending your doctor by doing so.

She did test your B12, right?

A low vitamin D can cause muscle pain but not usually as extreme as you are describing it.

Get ALL your lab results, from the hospital too. Pull all your symptoms together, when they started, etc. on a list (I know, I'm repeating myself). Then get a 2nd opinion. I can't emphasize that enough. Sometimes when you know a doctor for a long period of time, they can miss things. The doctor I knew for 15 years completely missed my B12 deficiency when I told her I was so tired I felt sick and had to quit my job due to falling asleep everywhere.

Are you tired or is it a lack of sleep?

If you get worse, go back to the ER immediately. I'm sorry no one has truly found an answer yet.

Annie
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