Junior Member
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Join Date: Sep 2006
Location: Minnesota
Posts: 94
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Junior Member
Join Date: Sep 2006
Location: Minnesota
Posts: 94
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Hi Kate,
Just wanted to say welcome... I had a thymectomy in March - the build-up to the surgery was scary and as it turns out they prepared me for things that never happened. My surgery went well and I did not have to be on a respirator afterward. I was in intensive care for 2 days, a regular unit for aday and home on day 4. I was sore - and I didn't do much for a while. Tkae care of yourself - rest beforehand so you go in strong. I had IVIg beforehand and it helped alot. Until quite recently I was getting IVIg every two weeks - it is an amazing thing - you almost feel normal afterwards.
You are young and they have had great outcomes with young people with thymectomies. It may take a while for you to feel results. I am still waiting for that magical remission but I do feel better than I did before the surgery.
The Mestinon takes a while to dose correctly...you'll figure it out.
Good luck and keep in touch!
Gabe
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