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Old 12-22-2009, 11:03 PM
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indigogo indigogo is offline
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Join Date: Aug 2006
Location: "all the way over on the West Coast"
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15 yr Member
indigogo indigogo is offline
Senior Member
indigogo's Avatar
 
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
15 yr Member
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Peg - sometimes I wonder if we are using the word "registry" when "database" might be more accurate. To me, a registry implies something official and mandatory while building a database of collected information is something very different. And while I agree that I wish there could be a centralized agency collecting all of the data in an official way, I'm still glad various attempts are being made - and I hope the data will be shared.

It's too bad the Ali registry failed because the survey was too long - more information is better than less. The new registry being set up in Seattle required about a 45 minute phone interview - I did it willingly - perhaps it was easier to talk while someone else wrote!
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