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Originally Posted by RNcrps2
Thanks for reading. Diagnosed with RSD in arm & it's over a year. I am on all kinds of meds, done blocks, trialed scs. Debating getting scs- pm dr. wants it to prevent spreading. The back of my feet have been aching. Sometimes if im sitting and get up i cant walk right for a few minutes. My husband says i need new sneakers (i have 3 pair i have been trying-thanks to kids with same size shoe, but they still ache). Now i have been waking with burning on the top of one foot. I think im dreaming so i get up. It still burns. Happens a few more times at night. I still dont believe/trust myself. I cant tell my husband because i dont know if he can take it. Watching tv my foot began to burn-im awake for sure. My foot is not cold or purple(a little red). It can't be. I cry... Cry again. I go to pm dr. today. Has anyone had spreading? Did yours start like this?
momof4
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I'm sorry you have spread- it seems most of us do. I have full body spread plus internal pelvic area. Please do lots of research before SCS- some have good results, but some have spread to internal pelvic area and spine. Believe me, you don't want that. In 15 years, I'm mobile, have only one limb partially paralyzed. swimming 86 degrees is really beneficial, stretching massage therapy, physical therapy. Sleep and right meds mean so much to have some functioning in life. My Dr. put me on a 200 person trial-I wasn't sleeping, now sleeping 10 hours and pain has gone done. The restorative sleep is so important. It was seroquel XR 300 mg- study for fibromyalgia, which I also have, but huge restorative sleep benefits.
Do lots of reading and research. Take care, loretta