I don't redcall readig anything about the Ali Parkinson's registry failing. Is there more info on this? Here's a link to their website
http://www.maprc.com/cm/content/registry.asp
And they do call it a database, as Carey suggested.
I recently completed an online update to my records there. It took only about a half hour (updated twice a year) and i thought all of the questions they asked were relevant.

It appeaars there will be various PD registeries or databases in the future. Hopefully they will collaborate in design and data collection and they will share i nformation with one another. And with us!