Thread: Tysabri Information and Check In part 2
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Old 12-23-2009, 12:59 PM
Grammie 2 3 Grammie 2 3 is offline
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Join Date: Aug 2007
Location: Colorado
Posts: 374
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Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
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I am so annoyed that we still cannot get info on new cases of pml. I, too, found that there are now 28 cases. I have again called Active Source to be told FDA has new case info-to have them tell me the company has that info I love being bounced around. I was also told by FDA rep that I can write to Freedom of Information Act... I will but I am so frustrated/cynical right now I have already decided "IF" I get any info it will probably be to tell me the # of pml cases and NOTHING else and then do I get the pleasure of writing them each month.

Has anybody's Dr been able to get/give any info ?

Linda
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"Thanks for this!" says:
ewizabeth (12-23-2009), Natalie8 (12-24-2009), Riverwild (12-23-2009)