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Old 12-24-2009, 08:28 AM
rach73 rach73 is offline
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
Default hi

Thanks for all your messages.

Haven't posted much on here as I managed to come down with the flu and a chest infection the day after visiting Oxford. Must be all those foreign germs! (can't remember the last time I actually left Devon!)

I received a copy of the letter my Oxford Consultant has sent my GP. Which clearly states that seronegative MG hasn't been ruled out. That they are completing a whole battery of tests including the new one which is more sensitive. He also states if the bloods are negative it still doesn't rule out seronegative MG, as only a plasma exchange will do that. Which is what I have been saying to my Drs here and anyone that will listen to me for over a year.

The good thing about the letter is that if I do need to go to hospital before the results are in, I can tell them (again) and show them the letter that proves it is possible I have seronegative MG and be treated humanely rather than if I have munchausen syndrome!

On antibiotics for the chest infection (safe ones) and thats clearing. Jamie (husband) thinks all his christmases have come at once because I have lost my voice. I sound a bit like minnie mouse! and I can't go above the volume of a whisper.

Thanks again

Love
Rach
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