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Member
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Join Date: May 2009
Location: Eastern TN
Posts: 314
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Member
Join Date: May 2009
Location: Eastern TN
Posts: 314
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Prednisone isn't an instant cure - wish it was!
Hi Tyson - glad you had a good holiday in Maine - I'm in the same boat as you - I've been on prednisone for double vision and general overall weakness for the last 6 weeks - the weakness is better, but it hasn't touched the dv yet. I don't know if you saw it, but I asked other people on this site with the same problem how long it took for the pred to kick in - got 3 replies - 2 months for one, 18 months for the second one and the 3rd one had pretty good results pretty quickly.
I hate this word, but patience is the key. Have you had any IVIG or only plasmapherisis? Are you on any immune suppresants yet? (Imuran, Cellcept, etc) It's all a big balancing act and sometimes we have to rebalance ourselves. I've had mg for 10 years now and every 2-3 years, I have what I call a "flare" where it gets worse and I have to rebalance everything again. I definitely have mg all the time but during a flare, it is definitely worse.
You probably need to go see your neuro when you get back home and see if there is anything else they can do.
Good luck!
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