Quote:
Originally Posted by Missyat
specifically:
SCN1A
It can cost up to $3000.00, did you get insurance to pay?
HOW?!?!
Having Epi write a letter so I can submit it to the local Rotary Club, any other ideas?
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I had my doctor reply and plead to my health insurance because it was 100% necessary as a diagnostic tool. I ahve been in need of this for 3 years now and I just went. I finally got my diagnosis of a rare conditon called "Ehlers-Danlos Syndrome: Type III" which is a newly discovered diagnisis since 4 years ago. Through genetic testing, this was the only way to figure out my diagnosis.
Keep me posted ok??? I'd love to support you. If you ever want to PM me, go right ahead!!! I love getting PM's!!! I know that it's corny, but I still love it anyways
~ dance59326