Connie, I'm both upset and completely confused by your situation. Do you have MND or what? Do they really even know for sure?
I'm going to come right out and ask - have you seen Dr. Weiss? Since you might be in Florida, I had to ask. What does "sunny south" mean?
I feel like starting a clinic with GREAT neuros, and other docs, and flying all of you to it. I cannot stand this anymore. Vitamins for a serious disease? I know, drugs can be awful but so can not doing enough. Damn.
I'm sorry you've been sick so much. What kind of muscle pain are you having?
Has anyone thought to do any basics like thyroid or a chem panel lately? CPK?
I'm just sorry that you have gone through so much and that life has been so hard.

Annie