Have had the breathing tests. They show a problem but no one takes any notice of that. I can go back to that Dr again. My eyes are not really a problem - its only slight there. I don't think my State has a NO. Once again its all about the travel and expense. Hoping to get some genetic tests done re CMS when I see GP next but am not sure if she can order those or not. Or if the tests are done in Australia even. If Neuro can't or won't order the CMS gene tests - who will /can ? There is a genetics dr that my second cousin went to - would that be the person I need to see ? Would he get upset if GP writes a referral telling him to test for CMS ? Won't he wonder why the Neuro has not written the referral ? I get confused by all the paperwork procedures and how to be pc to Drs.