Quote:
Originally Posted by whirlwind123
I tell you what., I am just so aggreviated., my mg expecially my ocular is been at its worse the last couple of weeks., we live about 1 hour away from relatives., and I try to explain my driving capabilities when my mg is bad, and my husband cannot drive and hasn't for years because of severe visual handicap., and when I try to explain this to people., expecially relative., you can just tell by the tone in their voice" yeah right she just doesn't want to come" I invite them here but you know how that goes., they act like this is nothing., and I mean nothing., I am upset enough becuase I could not do the things I normally do for th Holidays and then you get these inconsiderate............... I have had it...............I just want to tell them all what I feel................but, instead I think I will just scream eekkkkkkkkkkkkkkkkkkkkkk sorry for the scream.....
Thanks for letting me vent.
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It can be very hard to explain to others how this disease affects us. Most people have never heard of it, and don't really understand it even when you tell then about it. It is very frustrating, so go ahead and scream now and then. I do have one suggestion, however. Do you think it would help to send your relatives some articles or literature about MG so they can be better educated about it? Would they bother to read it? There's a fair amount of stuff online. Just a thought . . . I hope you have a Happy New Year.