Hello everyone! I am brand new to this site, but I really am having a tough time. I was diagnosed three years ago after my 24th birthday...The diagnosis came as a relief considering nobody could figure out what was wrong with me for months, but I did get to wear an eye patch!!
I had a thymectomy 10.31.2008, i havebeen forced to change careers, and now I am absolutely terrified to do ANYTHING that may push me over the edge and right back into the all-too-familiar ICU.
I know I am being silly, but it's gotten to the point where I don't even feel comfortable telling someone when I am not doing well....I feel like a burden to those closest to me...They were all there in the waiting room during my surgery and all helped take care of me afterward...I think it was just as hard on them, if not more!
I have resorted to turning my phone off and shutting myself in my apartment with my dog until I feel my energy creeping back. I don't have health insurance and my medical bills are up to six figures now, but I haven't been to a neurologist since my surgery! I would love any advice, words of wisdom, and any variation...Thank you, and I apologize for being whiny!