Hi! Thank you for your kind words! It worries me just as much that I have not seen a neurologist...I called the doctor that originally diagnosed me, but he is not working until the 6th of January! As far as meds, I can't afford them, so I haven't taken them in months...I am lucky I haven't had a crisis!!! When I feel the right side of my face start to get heavy or feel short of breath, I go to bed and do not move until I have to. It's really not ideal, I know. My muscle weakness is increasing considerably...I was folding laundry last night and I couldn't lift my arms...You know that kind of hollow feeling you have when you are weak? When your arm feels more like a straw than an actual limb?? I had to lay on my stomach and fold clothes...I do not mind making adjustments, it just feels a little....ummmm....unnecessary, I guess...

Ginny