I'm ready to beat the crap out of my neuro. I've been trying to get the Rituxan infusions set up for the last three weeks. First he FORGOT to put in the order. Then he put in the order for me to go to a center I already told him TWICE I wasn't going to go to. It's at least a 30 minute drive each way and I don't have anyone who can drive me there once a week for 4 weeks. Rituxan is a chemo med that often makes people have fever and chills and nausea, which makes it not even safe for me to drive myself that far. There's an infusion center that is literally about 10 blocks from my house, and it's affiliated with the same university medical center my doc is with. So, I call on Monday to tell them to send me close to my house. I had to talk to SIX different people to try to relay this message to my neuro. And remember I had already told him twice before. I didn't hear back from them, so I called again this morning and STILL nothing. So, when I'm at pharesis today I try talking to the docs and nurses there to see if they can help me. They made some calls and found out some information. Oh, wait for it . . .

The reason the neuro hasn't set me up at the center close to me is because, oh you're going to love this, he DOESN'T LIKE TO USE THE COMPUTER SYSTEM THEY JUST STARTED USING TO INPUT ORDERS!! So, instead of doing his damn JOB and getting me what I need, he's being a whiny little boy who's trying to make me go someplace that's very inconvenient for me all so he doesn't have to input the medical order into the computer!

Can you tell that I'm angry and frustrated???? And now, of course, he's on vacation so I have to wait at least another week to see if he'll stop being such an *** and put the freaking order in already. If he won't, my pharesis doc said that he would try to do it for me. By then I'll have waited almost a month to get this going.

I'm sorry to whine so much about this, but I don't feel well, and I've spent hours on the phone trying to get some information and gotten nothing but the run around. I'm very grateful to the pharesis people who advocated for me today, but they shouldn't have had to do so, and the fact is, STILL nothing has been done. I would change docs if I could, but as you all know, neuros who know something about MG don't grow on trees. MEH!! Again, sorry to whine. But I just really needed to tell someone or I'm just going to start crying or screaming or breaking things or possibly all three. Or I really might just smack the crap out of my doc--and I'm pretty sure I would NOT look good in one of those orange jumpsuits . . .

Thanks for listening.