Originally Posted by hannah1234

I turned the SCS off to see how the Ketamine worked. The battery is in my right hip, the incision would be hidden lets say if we were to wear a bathing suit bottom. No it didnt cause it to spread across my back. I had RSD in my right arm only when i had the SCS put in... but 6mths later when i took the artickhoke out of the water the boiling water hit my arm and shoulder which then caused it to spread across my back. I had a stellate block when i got home just to see if that would relieve the pain but it didnt. I didnt know we could even have it around our bra... it seems like the battery would be big and would stick out there. if you were to look at my skin you wouldnt be able to tell that there was a battery there, only by the incision above it. Also, consider which side you sleep on to which side you get your battery put in!!! I didnt think of that and i sleep on my right side

I never thought of that, when i bend you can see the wire on the side of me, it is kind of weird. It doenst hurt, it is kind of just a nuisance because i always did yoga and was flexible and this causes me to have to be a little bit more careful.

With getting the SCS if it gives you relief during the trial, i say go for it. But in the months following, you have to be REALLY careful not to lift heavy things to move them. I think it was worth it. I noticed a HUGE difference about 2-3 monnths after i had it implanted when i noticed id have pain here or there I would just adjust it. The downside is if you were to slouch when it is on hard lets say on a bad day, you get a shocking feeling... it is not painful you just have to move to a different position. It dramatically changed the appearance of the way my arm looked. the color came back down to normal so i didnt look like i had a purple and a normal arm, and also, the hair stopped growing like a gorilla I dont regret getting it. The only thing with the RSD is if you do get hurt, you may be back at square 1 again if it spreads- which is what happened when i got burnt which is why i did the ketamine. But the SCS Is such a great backup no matter what treatment we have I have noticed. I am 20 years old, and went from a college volleyball player, and high school volleyball coach to doing neither because of this. So, with the limitations, i dont think there is anything that is added on top of something we shouldnt do already. Any other questions feel free to ask