Originally Posted by pmcpmc

before
right eye ptosis
inability to dry hair
sexual dysfunction
slurred speech( unknown to me )
presssure on chest
aggressive short tempered


after
no ptosis
ability to dry hair
still sexual dysfunction
slurred speech still not noticeable by me but my wife
pressure on chest when standing
unable to keep head up without great strain on all upper back,shoulder and chest muscles.
Bladder problems
bowel problems
multiple infections
cataraks in eyes
unusual movement of eye presciption
very aggressive behaviour intolerant of other people.
Need to micro manage every situation driving my wife and others mad.
Non stop chatter about condition
need to voice my opinion stronly about everything.
Feel unsafe walking when i can,normally pressure build on neck,shoulders,back and chest is so large i cannot walk and become very agitated and mad at the least stresser.

Tingling down left arm paticularly from neck to fingers.
Same area sore to touch along a line from shoudler to fingers
dry skin worst on backside.

I wonder what other disorder would see this as an improvement.

As a result of this reassessment i have so far cut pred from 60mg day to so far 15mg over 2 weeks
ptosis no
strength yes
repeatability yes
neck still a problem
at 15mg and 60mg
agression still a problem
sexual dysfunction untested
mestinon reduced to nil while on taper
no change as a result

next neuro appointment 14 march 2010 brittish national health service
new gp
referral requested with gp to spinal clinic
referral requested with gp to urinary clinic
referral requested with gp to lung clinic
tredmill test passed with flying colours
referral made by gp to eye clinic