Thread: Anyone have Multifocal Motor Neuropathy ??
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Old 01-02-2010, 11:22 AM
Kelly in Oklahoma Kelly in Oklahoma is offline
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Join Date: Dec 2009
Location: Oklahoma
Posts: 4
10 yr Member
Kelly in Oklahoma Kelly in Oklahoma is offline
New Member
 
Join Date: Dec 2009
Location: Oklahoma
Posts: 4
10 yr Member
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Quote:
Originally Posted by nate View Post
I have MMN. I first experienced symptoms almost 20 years ago. They were so mild I did not act upon them at first. When I did it took several attempts and multiple doctors to get a diagnosis. I start IVIG on Sept 14 2009. Anyone had luck with Rituximab? My symptoms seem to be progressing more quickly now with the jerks getting worse but I have not had cramps yet.

I live in Dallas and am looking for a support group or even one other person to talk to.

Nate
How long did it take you to get a diagnosis? I was finally diagnosed in Oct. 2009 and finished my first round of IVIg Dec. 14. Are the jerks the only symptoms you have? I live in the Tulsa, OK area.

Kelly
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