Originally Posted by AnnieB3

Pino, Welcome. I'll get right to it, since it seems you need help now.

Can you take your pulse? Get a second hand clock or watch (or on TV) and count how many beats in either 10 seconds (and multiply by 6) or in 60 seconds. The pulse can get really high when the heart is trying to get you oxygen. Do you know what your normal pulse is?

Do you have an oximeter by any chance?

Are you having a hard time breathing in or out, even at rest?
Are you having a hard time swallowing?
Do you have so much increased generalized weakness that you can't do anything but sit or lie in bed?

If yes to ANY of the above, then it's time to go to the ER.

Another sign is if rest is not helping to make you better.
Another serious sign is sudden shortness of breath, like you can't breathe at all.

Are you on Mestinon? If not, I'd sure like to know why!!!

It's better to make sure you are okay and just go to the ER. Sometimes you can't even tell if you are getting worse if you get worse slowly. When I had my crisis, I had gotten so weak so slowly that I didn't even know I was as bad off as I was. They can do things for you in the ER like an arterial blood gas, MIP and MEP breathing tests, oximetry and a clinical exam.

When in doubt, go in. Getting worse with MG is nothing to mess with.

I hope you will be okay.

Annie