Hi Tyson,

Yes I had huge problems washing my hair, I even chopped it all off, as it was easier to care for. Chewing was often a problem for me, I use to have a glass of milk for dinner, because I couldn't chew, I sometimes still have problems and just eat easy to eat meals.

Our neurologists see us for, if we are lucky about 10-15 minutes either every few months or weeks, depending on your neuro. I see mine every 4 months, after 7 years. He makes me do the chicken dance walk 5 metres, yes 5!!!! and then says I'm doing well. Weeeeelllllllll I think you are seeing me after I've been sitting for 15 minutes and resting up, not on a normal day.......its frustrating, but the way things are. One day I might just mention this, and see what he says, unfortunately he doesn't understand my weird sense of humour. He then asks if I've been doing any work, I just smile and say no not up to it yet. He doesn't seem to understand that just getting up in the morning is work enough for me.
I hope things keep on a even keel for you,
take care and don't go doing too much
Kate