....with some reassuring words!

OK---I have hemifacial spasm....& since...1991 been treated quite successfully with botox injections.

I usually get them...every 6 months..(most people get 'em...every 4 months...but my injections.."lasted"...longer.)

I have not had any for over a year now....(had seen my neuro 3 months ago...for a general check up)--ANYWAY.....here is my story of .."woe"--

I live in Philly.....& as a writer....keep a very small one room studio in Beverly Hills..CA. (I also LUV the warm winter weather.....& my health feels better out there...no cough....etc)--

Anyway.. noticed last 2 w...wks or so---my " facial hemispasm" started to return & I knew I'd need another set of injections---BUT..2 nites BEFORE leaving for LA.....started getting strong myoclonic spasms...in my neck.....back AND front.. (by my trachea)---very strong..but ONLY occured.....while lying down-!
Obviously made it very difficult to sleep--! Arrived in LA...last Tues...29 Dec...& FIRST nite they....they re-occured! I could NOT sleep at all...(They started about midnite...when I LAID down to sleep......& in spite of taking an extra....valium...continued.....til....like 4 AM.....when i finally went off to sleep---(I had called my wife...& told her....I was coming home......rt away......)---I made arranments for a flight next day---(i HATED leaving 74 degrees & sunny weather...for...the brutal cold of Philly)---

ANYWAY...........got home.....slept very well....first nite.....2nd nite they re-occurred.,...(I called my neuro
.am seeing her tomorrow...Monday...4 January)--I definitey need more botox......(like i said..it has been awhile)----BUT....my question..( and I KNOW...& HOPE i get some answers from people WITH this condition or KNOW about it)--here goes-- I am HOPING that this "cervical"...(neck) spasm...IS just "related"...to the hemifacial spasm.....maybe the it spread the neck.....this being the case....aside from getting my regular..."botox" shots to my face....my neuro can give me some into the neck muscles! I'm going back...to LA....Thurs-----& I'm hoping...like i said....that this is.."related"...to the hemispasm....& NOT something new!

IF....ANYONE here has hemifacial spasm...or knows about it---has this happened to you? It would be SOooo. reassuring to hear from you
Please---get back....asap----Kindest regards---Chris