Quote:
Originally Posted by PMCPMC
UNABLE TO KEEP HEAD UP WITHOUT GREAT STRAIN ON ALL UPPER BACK,SHOULDER AND CHEST MUSCLES.
NEED TO MICRO MANAGE EVERY SITUATION DRIVING MY WIFE AND OTHERS MAD.
NON STOP CHATTER ABOUT CONDITION
I WONDER WHAT OTHER DISORDER WOULD SEE THIS AS AN IMPROVEMENT.
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PMC,
I relate to these things! I know that it's not funny, but I had to laugh about the 'non-stop chatter about condition' and the 'micro-managing' to the point of driving others insane. Sometimes, I want to say, 'ah...will ya shut up!' to myself when I hear myself talking about Myasthenia Gravis.
I get really sick of hearing myself saying those words, especially 'cause no one knows what I'm talking about half the time. I'll bring up things I've learned about acetylcholine, or molecular mimickry, or 'other antibodies at work' to friends/family, and the realization interjects that this is probably really boring for them (usually when the eyes start to glaze over).
I take comfort in picturing the day when MG isn't on my mind 24/7- then I'll know that it's not affecting my life as much as it is now, at least on that day.
Nicky
P.S. I'm glad, after reading your posts lately, that you are doing much better!