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Old 01-04-2010, 06:47 AM
girija girija is offline
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Join Date: Nov 2006
Location: southern tip of west coast
Posts: 582
15 yr Member
girija girija is offline
Member
 
Join Date: Nov 2006
Location: southern tip of west coast
Posts: 582
15 yr Member
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Hi all,
Just a suggestion, yu might have done it already...... (its 3am and I M tired, havent read every post)
How about writing to the researchers directly to get the info?

girija[




LinQUOTE=LindaH;606495]This is good news , but I still can’t understand why it took close to 5 years for this follow-up data to be made public. The original study on embryonic cell transplants for PD (Freed et al) was published in the New England Journal of medicine in 2001. If the researchers at Feinstein followed up with these trial participants for 2-4 years after the conclusion of the study, the final year of follow-up would have been 2005. What happened to this data from 2005 until Jan 2010 when it was published in Journal of Nuclear Medicine? Were there any previously published articles? Haven't found any yet.

This was a pivotal, and highly cited study, yet for 5 years, it appears researchers and parkinson’s patients were not made aware that the results were better than first reported, especially for the over -60 participants. The follow up results also showed more time may be needed to adequately test treatments like cell transplants, than the typical 6-12 months, Such information could have been used to better design later clinical trials.
Is it possible the” Parkinson’s community basically forgot about the research “ as stated in the press release?
As Paula says "Time is not neutral "[/QUOTE]
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