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Member
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Join Date: Oct 2009
Posts: 474
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Member
Join Date: Oct 2009
Posts: 474
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Nicky- I had no idea you too had a thymoma. It wasnt cancerous was it? They tend not to be.
Thanks for the info on the Thymectomy and gonig through a crisis, or exasturbation after having it done, yet i dont understand why because i had the plasmapheresis done right before surgery I should have been as good as a god, haha.
I know there is hope, and thanks for keeping it in check, yet it seems so far away, i just want to be normal again. Or atleast for my last year of high school. But its okay. Im able to deal with it. Im calling my doc. tomorrow to see what he wants to do with all this medicine, im sick of it not working, i want to try cellcept. Any ideas on the cellcept?
My arms are getting so tired jst sitting here typing, I couldnt hardly drive today, which is new. My arms get too tired, so that i have to switch off and on with each arm. Im about to sleep, and see if im able to go to school tomorrow..I also just choked on some water, so im thinking i might be heading towards a crisis if i dont watch myself.
Thanks for the encouraging words Nick, they really do help as i often dont have anyone to talk to! But you guys are aways here!
I know that when the medicine kicks in, it will be much better, yet waiting for that as you said is very frustrating.
Thanks again.
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