I hear ya. I am about to be 39 and I have MS and as a result of that, ON. I've had it for almost 2 years (the ON) and it's HELL. I've been through alot of treatment too, so I totallyunderstand how exhausting it is and how demoralizing it is to have to go from living your life to just trying to survive. It's not what we planned for, is it? I don't remember signing up for this!

WHile this board can be kinda quiet, there are folks here who will respond. Sometimes it just takes us awhile cause we're also dealing with health stuff.

All I can offer, is that I found it hugely helpful to fund a good support group. You may be able to get connected through a pain clinic or your GP. If you aren't being seen at a pain clinic, it may be a good time to ask for a referral. This is not something that just magically goes away or gets better on its own. It's a serious condition that needs managing.

Hang in there!