Quote:
Originally Posted by screwballpookie
Hey Everyone,
Its me again. Just have a question and a little update on my condition.
Ever since I have had my back problem my right shoulder had hurt me some while going through the back pain. Now that the back pain has settled down for the time being to being tolerable my shoulder seems to be feeling worse. My shoulder is bothering me so bad I can barely move my arm. I just want to sit and cry sometimes. I am working on the 6th day of no release of it hurting so bad, I called my attorneys office and of course they put me thru to someone that isn't even working on my case so i have to call back this afternoon. They are suppose to set me up with a doc in Des Moines that specializes in crps or rsd for an IME. I was trying to find out if that has been done or if there has been approval from wc to fix my leads or if I should just go to my pain doc. The girl I spoke with said she knows nothing about my case and I asked to speak with my attorney and she said he was in a conference with his son so he couldn't come to the phone at that time and the woman that is working on my case won't be back til this afternoon, so I have to call back this afternoon.All I know is I feel like just cutting from my shoulder all the way down to my arm off it hurts so bad. I know the saying if it is rsd which I think it may be "Use it or lose it" but how do you use something like your shoulder when it hurts so bad just to move or when I try to get up from a chair I have such horrible pain? I am trying to use it but it hurts so bad sometimes I just want to be a big baby and cry. What can I do?Any suggestions will really help me alot. Especially since I can't seem to get anywhere with my attorney rite now so I don't dare call my pm doc til I hear from my atty. what he wants me to do. All i know is it hurts so bad. I am trying my darndest to keep from stress as much as possible, but my mom is makeing it very difficult. She is starting things with my other family members and my best friend as far as telling lies about what I said the last time we talked there for things are starting to come between my best friend and I. I don't know how much more I can take. I feel like I am headed for a nervous break down . I have been crying so much that on both sides of my nose but above my mouth is so dry from me wiping tears. I don't know what to do anymore. please help me. I feel like I am going totally and completely crazy. Please help me. Thank u.
Sincerely,
Tracy  |
Tracy, I just am checking in to see how you are feeling? I know how bad the shoulder pain can be. Before each physical therapy treatment I took pain meds. They would strap me to table and work the shoulder. It is very painful during the treatment, but in the end-have full range of motion of shoulder/arm and no pain. It's been 15 years now and I still stretch, swim, and try to keep everything moving. Water therapy is really good with water that is 86 degree. There was a time I couldn't swim, but now can. The therapist gave me a tool, it's a round cylinder styrofoam about 5 ft long and 6 inches thick. I lay on it with arms stretched out and roll from side to side. It helps stretch those shoulder muscles. A therapist knowledgable in RSD is imperative. I also had one for my hand, but only got 50% usuage back. Was misdiagnosed and started late in therapy.
Have you thought about asking your Mom to keep your conversations private. Like telling her your relationship is important to you and the talking to 'Mom' helps you. Then telling your friends, other family the same thing-so your conversations don't get passed around and misunderstood. Have you thought of telling your attorney you are in need of counseling? RSD is something that most people need some professional help in dealing with. It's a loss like death is a loss, and there are steps of grieving our losses we need help in. Support group for RSD is also helpful. RSDSA is the national organization and if you go their on the web and put in your zip code, you'll get the closest support group. I was in therapy for 2 plus years when my parents died and 10 years into RSD and going full body, started therapy again and still going to same Dr. for the last 5-6 years. He has helped me so much.
Journaling is something that has helped me a great deal. Meditation, prayer, Visualization, Biofeedback, Music, Scented candles, epson salt baths, all these things helps us by the way of distraction and getting our feelings expressed. Do you like to read? Motivational books can be a lifesaver. Michael j Fox wrote a book, Always looking Up I'm going to buy. It's about him dealing with Parkinsons Disease. When I was in therapy the first time, I read about 50 books. Today there are tapes to listen to etc.
RSD is very painful physically and emotionally does so much to ourselves and our families. Communication skills are so important. It's importantant to stand up for ourselves, with respect.I personally needed professional help to do that. I really hope the best for you and WC should approve of professional help for you for this disorder.
Did you look at the video Sandel put on this website about medical information on RSD. It is really good, and the one just to the right of it. It has the sond my Sarah McGloughlin, Angels. It's really good. Let us know how you are doing, we really care- loretta with soft hugs
