update on my symptoms:

Ok so 4 and a half years in and things have changed a lot for me (poss due to change of jobs - left office job which aggravated tos more).....or just due to length of time suffering with this for - i understand things can change overtime anyway!

Crampy/sharp pains in the innerforearm
dull pain at base of skull
very bad headaches - mostly over left eye
little finger shakes and swells slightly - changes colour, purple
cold hand
sensitivity to the wrist on the front of hand - sometimes have sensation that there is something on front of wrist when there isnt
pain in shoulder blade becoming less of a feature recently

rest of my back seems to be getting worn down by years of this - not sure what state i'll be in 10+ years.....

botox helping - lots of the symptoms simmered down - slowly came back after 3-4 months post botox - 2nd round of botox next week.