Originally Posted by loretta

Hi keep smilin, YES, forgetfullness is part of RSD. That can be part of hard feelings, us not remembering what we have said, or not remembering what someone has said to us. It has to do with the Limbic part of the brain. that is affected by RSD. It's why we can be talking and not remember what we were going to say, or we grope for a work that just disappears. I had to stop answering our business phone, I would forget a cumstomer would call with an order for coffee, and they would get mad when the coffee didn't show up.
There is a thread on the front page from Sandel, It's about current medical evidence showing 5 parts of our brain being effected by RSD. It's good. and the one just to the right of it-a video of Sarah McGlouglin singing Angel about RSD.
It's also why we have anxiety, depression, parts of our brain being affected by RSD. I take lorazepam, an anti-anxiety med that helps me so much. When I was diagnosed full body in my 10th years of RSD, the neuro suggested I see psychiatrist to help me adjust- I didn't like his two recommendations, so looked at the yellow pages and found a jewell. Moved here from New York, a Psychiatrist, Neurologist, and Pharmacologist. I call him my 3 in 1 Dr. He also teaches, and does pharmaceutical trial studies. I was just in a 200 person study he did. It's a miracle I'm sleeping again 10 hrs. a night. I was able to drop down in pain meds and anxiety med. He just built two clinics that each have a HBOT in them and I'm saving for treatment. I saw him once a month for 5 years and now once every two months. I can't wait to try the Hyperbaric Oxygen Chambers. He's been on TV with some of the fabulous outcomes. I saw him yesterday. A couple years ago my toes started curling up off the floor. He had me in the pool every day doing exercises and in about 4 months my toes were touching the floor again. Having the right treatment as soon as possible is critical. I am fully mobile, with the exception of one hand. I pulled nerves while water skiing-misdiagnosed, with RA. I knew I didn't have arthritis and Drs. tests showed negative, but he insisted I had it. So I flew a few states away where we were from and the sports injury ortho, saw my hand and diagnosed RSD within one minute, sent me to hospital for nuclear med test that was positive. He started me in pt next day and I got partial use of hand back. It's kinda like a claw, but I can cut my own food, button clothes etc. So I'm grateful for that. I also did desensitization, which is critical. Both at the ortho pt and at home. (I flew back to AZ and got a neuro and ortho hand specialist.
Take 5-6 plastic bowls, Fill them with cotton balls, coffee grounds, sugar, beans, etc. and can run hands and feet thru the different textures. It's important to desensitize our bodies, or we hurt from clothes, sheets, being touched. Hope that makes sense. Four years prior to my water skiing thing, I had breast surgery, benign, but got RSD in left shoulder right after surgery. The doc sent me to rehab dr. and pt- It took 100 treatments to get full range back. I did massagae therapy on my own. Massage therapy is still wonderful. It promotes circulation, desensitizes, keeps muscles stretched and mobile.I hope this helps. Stay strong, and you CAN get motion back. I'm grateful for the therapy I've had, and continue to have-although not weekly. Insist from WC, if you are dealing with them, on pt. massage therapy, and counseling. I can't remember if you are dealing with WC or not.
I paid myself for massage therapy and counseling, but WC does pay for it.
Keep Smilin, please know we care about you and what you are going thru. Please don't hesitate to ask questions-keep positive-Stay strong, and fight for your rights. I didn't sue the Dr. behind my RSD, it was so long after the surgery that I realized the RSD came from the breast surgeon. It takes so much to fight medical world, WC. Insurance. I know-we sued the Dr. that killed my Mom. Yes, we won, but came at a great emotional cost. My Dad never recovered and died. We had video deposition, as we knew she wouldn't be alive for trial, and showed the video at trial.
My daughter is a court reporter and deals with medical malpractice issues, even RSD since she became a reporter 10 years ago.
Take care, loretta with soft hugs