I am sorry to hear this...that you have a hereditary form of PN.
This has to be the hardest type to deal with as a patient.
I hope you continue to come here and respond to others who may have this diagnosis too. Each day is a new day, and there may be new things on the horizon for this form of PN.
I've lived with a severe GI birth defect all my life. It cannot be fixed or go away. And I have learned over the years to listen to it and take care of it and myself. Each of us has something to deal with I guess.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei
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Weezie looking at petunias 8.25.2017
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