Quote:
Originally Posted by mrsD
I am sorry to hear this...that you have a hereditary form of PN.
This has to be the hardest type to deal with as a patient.
I hope you continue to come here and respond to others who may have this diagnosis too. Each day is a new day, and there may be new things on the horizon for this form of PN.
I've lived with a severe GI birth defect all my life. It cannot be fixed or go away. And I have learned over the years to listen to it and take care of it and myself. Each of us has something to deal with I guess.
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Thank you for sharing Mrs D. Sounds like you deal with a lot. Do you have PN also? Do you have any suggestions for supplements for my type of PN? I'm taking many Rx meds now to deal with my lupus but only Vit. D as a supplement. I notice the B vitamins are mentioned frequently
I don't want to stress my organs any more than they already are so I hesitate to take anything unless I get a good recommendation. thanks, Raina